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102. A. D. Marcus, "Frustrated ALS Patients Concoct Their Own Drug," Wall Street Journal, April 15, 2012, http://online.wsj.com/news/articles/SB1000 1424052702304818404577345953943484054?mg=reno64-wsj.
103. D. L. Scher, "Crowdsourced Clinical Studies: A New Paradigm in Health Care?" Digital Health Corner, March 30, 2012, http://davidleescher.com/2012/03/30/crowdsourced-clinical-studies-a-new-paradigm-in-health-care/.
104. A. Hamilton, "Could ePatient Networks Become the Superdoctors of the Future?" Fast Coexist, September 28, 2012, http://www.fastcoexist.com/1680617/could-epatient-net work s-become -the-superdoctors-of-the-future.
105. L. Scanlon, "Genentech and PatientsLikeMe Enter Patient-Centric Research Collaboration," PatientsLikeMe, April 7, 2014, http://news.patientslikeme.com/print/node/470.
106. N. Zeliadt, "Straight Talk with… Jamie Heywood," Nature Medicine 20, no. 5 (2014): 457.
107. A. Opar, "New Tools Automatically Match Patients with Clinical Trials," Nature Medicine 19, no. 7 (2013): 793.
108. T. Stynes, "Cholesterol Drug Trial Uses New Approach to Recruit Patients," Wall Street Journal, December 19, 2013, http://online.wsj.com/news/articles/SB100 01424052702304866904579268270123589210.
109. A. J. Parchman et al., "Trial Prospector: An Automated Clinical Trials Eligibility Matching Program," Journal of Clinical Oncology 31 (2013): abstr 6538.
110. J. Walker, "Data Mining to Recruit Sick People," Wall Street Journal, 2013, http://online.wsj.com/news/articles/SB100 01424052702303722104579240140554518458-printMode.
111. B. Goldacre, "RandomiseMe: Our Fun New Website That Lets Anyone Design and Run a Randomised Controlled Trial," Bad Science, December 16, 2013, http://www.badscience.net/2013/12/randomiseme-our-fun-new-website-that-lets-anyone-design-and-run-a-randomised-controlled-trial/.
112. H. M. Krumholz et al., "A Historic Moment for Open Science: The Yale University Open Data Access Project and Medtronic," Annals of Internal Medicine 158 (2013): 910–911.
113. M. Herper, "No More Secrets: Medtronic Shows How Open Science Might Work in the Real World," Forbes, June 19, 2013, http://www.forbes.com/sites/matthewherper/2013/06/19/no-more-secrets-medtronic-shows-how-open-science-might-work-in-the-real-world/.
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115. H. M. Krumholz, "Give the Data to the People," New York Times, February 3, 2014, http://www.nytimes.com/2014/02/03/opinion/give-the-data-to-the-people.html.
116. R. E. Kuntz, "The Changing Structure of Industry-Sponsored Clinical Research: Pioneering Data Sharing and Transparency," Annals of Internal Medicine 158, no. 12 (2013): 914–915.
117. R. Winslow and J. D. Rockoff, "J&J to Share Drug Research Data in Pact with Yale," Wall Street Journal, January 30, 2014, http://online.wsj.com/news/articles/SB1000 1424052702303743604579351261144315256.
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119. L. Marsa, "Health Care's Big Data Mandate," The Atlantic, December 16, 2013, http://www.theatlantic.com/sponsored/cvs-innovation-care/2013/12/health-cares-big-data-mandate/78/?sr_source=linkedin.
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121. J. Comstock, "UCLA Pilots Mobile Vision Testing App for Patients with Diabetes," MobiHealth-News, April 23, 2014, http://mobihealthnews.com/32369/ucla-pilots-mobile-vision-testing-app-for-patients-with-diabetes/.
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123. P. Cameron et al., "Crowdfunding Genomics and Bioinformatics," Genome Biolog y 14 (2013):134.
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Глава 12
1. L. Fox, «Snowden and His Accomplices,» Wall Street Journal, April 14, 2014, http://online.wsj.com/news/articles/SB100 01424052702303603904579495391321958008.
2. N. Bilton, "Entering the Era of Private and Semi-Anonymous Apps," New York Times, February 7, 2014, http://bits.blogs.nytimes.com/2014/02/07/entering-the-era-of-private-and-semi-anonymous-apps/?ref=technology.
3. S. Halpern, "Partial Disclosure," New York Review of Books, July 10, 2014, http://www.nybooks.com/articles/archives/2014/jul/10/glenn-greenwald-partial-disclosure/?pagination=false&printpage=true.
4. D. Frum, "We Need More Secrecy," The Atlantic, May 2014, http://www.theatlantic.com/magazine/print/2014/05/we-need-more-secrecy/359820/.
5. "A Robust Health Data Infrastructure," Agency for Health Care Research and Quality, April 2014, http://healthit.gov/sites/default/files/ptp13-700hhs_white.pdf.
6. H. Kahn, "Who Really Owns Your Personal Data?" Details, May 1, 2013, http://www.details.com/culture-trends/critical-eye/201305/sharing-biodata-on-apps-and-devices?printable=true.
7. L. Mearian, "How Big Data Will Save Your Life," Computer World, April 25, 2013, http://www.computer world.com/s/article/print/9238593/How_big _data _will _ save _your_life?ta xonomyName=Big+Data&taxonomyId=221.
8. E. B. Larson, "Building Trust in the Power of 'Big Data' Research to Serve the Public Good," Journal of the American Medical Association 309, no. 23 (2013): 2443–2444.
9. J. Ball and S. Ackerman, "NSA Loophole Allows Warrantless Search for US Citizens' Emails and Phone Calls," The Guardian, August 9, 2013, http://www.theguardian.com/world/2013/aug/09/nsa-loophole-warrantless-searches-email-calls/print.
Ознакомительная версия. Доступно 25 страниц из 124
